OP  "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | An update. One notion is that this fuzzy tongue is a fungal issue (not thrush, however).
My UK oncologist suggested sucking on a pineapple juice ice cube every day for 4-6 weeks. I tried this, and it didn't make a noticeable difference in my case (but I came to rather enjoy the ice cubes!).
My BC cancer dentist suggested clotrimazole pouches, but these don't exist in the UK for oral use.
My UK oncologist then prescribed amphiterazin (sp?) lozenges, but it turns out they stopped manufacturing those two years ago!
In researching one of these medicines, I found a reference that one is very similar to nystatin, and I happen to have two bottles of nystatin solution, which was suggested by my Canadian GP but I never tried consistently.
So! I've just started using the nystatin solution 3-4 times a day, and will report back in a couple of weeks.
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
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