An update. So I'm now 18 months post treatment, and it seems my furry-tongue has started to improve somewhat. This *may* have coincided with a recent dental cleaning, but that may only be coincidental, too.

Otherwise doing well, continuing to get more fit, my weight is just about back up to what it was at my third and final chemo, and no, weight gain isn't a goal, per se.

Moderate dry mouth is just something to deal with, and xylitol mints are my saviour. Neck muscle cramping is also just one of those things and isn't a big problem.

Pretty much I feel great!


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.