Hi Laura,

Simon felt dreadful for at least 10 days after the peg was inserted. We were all surprised (I'm being polite here) that he was not on painkillers and was sent home in the state he was in. We thought something had gone seriously wrong. It passed, however, and he thinks the PEG is a godsend. I still think his pain was mismanaged. Perhaps everyone reacts differently and both Simon and your hubby are within the normal range. Having said that, if you have doubts (as a nurse) get him seen to.

Re: Christine's comment about hydration, I rang Simon a couple of times a day during his treament and my first question was always how much have you had to drink. He has a kidney condition, and keeping hydrated was imperative. He drank and continues to drink 2.5-3 litres a day, and I think this was a big part of him getting through the treatment in one piece. See if you can encourage him to drink as much as possible.

You'll both get through this. I remember we all were counting down the weeks of radiation and up to week 5 it seemed to go mighty slowly, and then time just rocketed along. I can hardly believe he's 6 weeks out from his treatment. I'm thinking of you. My family were all just there where you are now. Linda