"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there - welcome! Sounds like you've had a tough run of it to say the least - imam sure there are many here who will pop up with great advice. It lists that you had radiation, but you didn't say when... That sometimes affects healing in a big way! so it could very well take much longer - it sounds like the surgery below your eye may have affected the closing of your mouth... Muscles can be stretched but it something that needs to be done daily perhaps through physio therapy. Same with the truismus. Open open open. I stretch my mouth daily , my lips, my neck, my cheeks etc...I use exercises given to me by a physiotherapist. I also go for acupuncture to help loosen up muscles and return blood flow to the area and for 6 mos I had lymphatic massage to promote drainage and help decrease swelling. It really helps. When you get your clear PET - maybe then ask about them releasing your tongue - some drs sew it to the floor of your mouth, I believe here's a reason for it but some here have had the surgery done without it and have better functionality - I lost a third - 40 % of my tongue yet stil have full functionality. It's still somewhat swollen from radiation, particularly in the morning - but for the most part - other than muscle tightness - and swelling a bit - I'm doing much better. Dr.s work to cure you but often quality of life issues are left up to the individual to figure out. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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