Welcome to OCF Chandra. You will find lots of assistance here. After such a big surgery, so many things can be compromised while getting rid of the cancer. It doesnt make things very easy for the patient afterwards but the most important thing is you are still alive. I have had a similar surgery, a mandibulectomy and it took me well over a year to bounce back. My situation was different as I had several complications and setbacks. I know how hard the recovery from this is. It sounds like you are doing very well!

Your surgery was a very involved one which takes a year to recover from. If you are having problems still with healing then you may want to ask about hyperbaric oxygen treatments (HBO). Its where you lay in a glass tube breathing pressurized oxygen for a couple hours a day. I have had 125 of these treatments and found them very helpful. I doubt you would need that many, possibly 40 or so.

As far as speech goes, have you seen a speech pathologist yet? You should be working with someone to help get some clarity in your speech. I am unsure of what other countries offer.

If you have gained some weight then you must be doing something right! With compromised eating, gaining weight is not easy. Maybe I missed it but are you using a feeding tube? I also have trismus and have lost all of my teeth so my eating is difficult. I do eat but not enough of a balanced diet to get rid of my feeding tube. There are some people here who are unable to eat or drink anything at all. Im sure its a major adjustment to make but they are still able to lead a very good life.

Best wishes with everything you are going thru!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile