OP "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Thank you... I will show this to my dr. I am going to change ROs - I don't want to create a world of trouble for this guy as really I don't dislike him and I am sure he's good. But I've had enough bad experiences from him that I just can't stay with him, and that makes me feel bad... I am sure he's quite brilliant as he wouldn't be working there if he wasn't and I'm sure I have him to thank for the fact that I am having minimal side effects at this point despite being 6 mos out, ( I am not sure what the future holds with regards to radiation fall out but for now I can't complain ) However - his attitude just plain scares me.. I do know from my previous scan I'm clear... or so I'm told. However I do think there should be an occasional follow up scan... at the 1 yr mark maybe? then two years? then that's it unless there is reason. I do know from my mother's lung cancer that by the time it shows up on an xray... it's too advanced to treat more than palliatively (mind you her cancer was small cell and all through her lungs - but the time a tumor forms it's easy to slow but impossible to cure). I do want a scan at some point - maybe the one year mark of my surgery... just to make sure. (feb) then maybe the two year mark of my rads ending... (even if I have to go through my family dr to do it or through someone else or pay for it out of pocket). I'm not panicked or anything and at that point then I would be happy. I just feel and this isn't all about the scans, but I just feel that with his attitude, we will end up detecting things too late if something were to happen. And since he is my primary dr. this concerns me... even though my SO said if you have any problems please feel free to call and make an appointment... we'll fit you in no problem. ergh... I just hate being mean to people or causing a problem because I am very grateful for everything.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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