Thanks Brian. Christine actually sort of answered our question. Everyone seems to have not gotten nearly as many rad tx as we have. Kevin had 3 weeks, then a one week break. He recovered quite well in the one week, but now we are 16 into the last 30 and it's getting bad again. He doesn't like to use the PEG, so is still drinking Ensure and tons of water. Not sure how much longer that will last. I was wondering if things spiral down the last 2-3 weeks, or do they just sort of continue as they did during the first 3 weeks. Using the Lortab helps him to be able to still have liquids by mouth. The BMX rinse helps too.
When we started tx we were told how bad it would get. Literally were told he would look like he were dying and he would probably feel like he was, but he'd come back around. That hasn't happened. He's been tired and uncomfortable, but nothing that has scared us. I know this sounds wierd, but I even asked if it was working because he wasn't too sick! They assured me it was and now he's becoming quite the red neck with a throat full of yuck, so... Have others come through this relatively comfortable?
Now that we are nearing the end of this we are questioning how to get past the fear of reoccurence and just living "normal" again. It, as you all know, has been a terrifying adventure from the get go. How do you come down from the hype?