"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | It is so good to hear from you here Barbara even though I keep up on FB. The last thing you need is the stress of getting all your records together so you can get your scans and treatments at the one hospital. I do not know how all this works in the US but wonder if it could be similar to what happens in my country. My GP (General Practitioner - think PCP for you) gets updated via fax or letter for most treatments by specialists in and out of the hospital. I do ask for copies of pathology reports at the hospital but also ask my GP to print me a copy of any correspondence he gets. I suspect it varies state by state with you as it does here but so far so good getting my information. Love and hugs during this time. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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