Christine,
I was just thinking about what you had said earlier about me staying on top of things. I guess all I can think of is the last few times I was worried about a spot on my tongue it has been scar tissue/radiation damage and I got worried for nothing. I keep telling myself it is just radiation damage, but really how do we know that if they do not check it out? I guess I have just been putting it off. My neck has been feeling different for awhile now, but I have just chalked it up to radiation damage rearing its ugly head again. I really did not start worrying about it until the pain began to show up in other places. I really hope I did not wait to long, after-all I had a completely clear PET scan in July, same thing as two years ago with my recurrence. Clear scan in July and biopsy in OCT. showed cancer. In my mind I keep thinking surely it could not happen again that way and show up so soon. Who am I kidding? If it happened once we all know it can happen again. I just do not know if I really want the answer to what it could be. It look just like it did two years ago and is acting just like it. The ear pain started first and then a lump showed up and the rest is history.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12