Hi Kelly, We have two letters sent certified mail to us by his RO saying that my ex-husband's PET scan showed bilateral mets to his neck from an unknown primary and that he needed to be in radiation therapy or he would die. Well, had they biopsied the areas, they would have found out it was a residual problem from his throat infection. His latest scan was clear. PETs light up lots of stuff--a friend had ribs that had been broken years earlier and they were still lighting up on his PET. Thankfully, his doctor asked a few questions before he diagnosed them as distant lung mets.
I know of two survivors whose caregivers are regular posters here who were sent home with only the hope of palliative care. They now have no evidence of disease--one of them for over two years.
Get a second opinion, or however many you need to feel like you have done everything you can do.
It is hard sometimes not to, but, please do not lose hope.
I'll be keeping you in my thoughts and prayers for you to be cancer-free.