Thanks everyone. Yes, John did have some marinol awhile back, tried it for a couple weeks, and it was worthless, albeit costly! So now we're considering MJ. Didn't know about the vaporizing - thanks for suggesting that Charm. So much to learn.
EricS, you are a hoot -- the libido boost would be well appreciated here!
Karen, I commend you for getting Alex out to restaurants. John simply refuses to go out anymore. (so basically the social life stinks.) Can't say I blame him much, he chokes with every bite and it's not etiquette friendly for public. frown
I make him alot of poached eggs, biscuits & mashed potatoes w/ gravy and cream of wheat.
I suggested the other day would he be able to get back to the speech therapy exercises he learned earlier, which were working on improving his swallow muscles. Yes, probably, he said. But lately due to the crappy chemo regimen and general frustration with it all that hasn't happened. Is it worth it??!? This entire experience is HELL. I just want to scream at his RO for doing this to is throat, and I'm afraid he's headed back for another PEG tube.
Meanwhile we are dealing with an incurable prognosis.
Sorry for venting -

Frustrated and worried -

Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.