So I sent you a pm...but I didn't see that susan responded on here, which I thought was odd but she may have been too busy. I know someone else around your age that lives in staten island new york that had almost the same treatment, but she had chemo too. I don't know if you are interested in talking with her, but let me know if you do and I can get you pointed in the right direction, smile
Congrats on the 2 years!

25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010