 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jingle Bell, I like this name but am here to welcome you to our family even tho I hate to see anyone with this disease, this is the best place for friends and answers. I am sure that any questions you have will be answered by some of our memebers. Give my best to your husband and let him know you are his #1 booster thru this time. I'm not much good at advice but haven't seen anything about drinikng water. Make sure he has plenty of it daily. I have been drinking 6 to 8- 1.5 liters a day for over 4 yrs now and it helps. I drink spring water but we all have different ideas about which we like.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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