 Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Welcome, Jingle Bell,,
Sorry you have to be here, but glad you found us. I was fortunate in that I didn't have to have a trache or skin grafting. I had a good part of my tongue removed and 30 lymph nodes. I also had an entire summer (basically) of radiation combined w/three sessions of chemo. I am doing well, so far, but make sure your husband gets proper nutrition during his treatments. I had a PEG tube, and was really glad to have it out. I am still mostly eating soft foods two years out of treatment. He will just have to experiment to find out what works for him. I am still drinking at least 3 Ensures a day in addition to regular food. Yogurt was one of the first foods I could eat. I can also eat most seafood, if it's not heavily breaded. Good luck to you and your husband!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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