Chetan - hang in there, you're nearly home!

1. nausea - zofran did nothing for me either and like you I was taking it daily for months. Also tried a few other remedies. The only thing that finally worked for me was Compazine. You might ask about it.

2. tongue blisters - oh yeah. A big time issue for me, ditto everywhere else in my mouth and throat. I used viscous lidocaine to try and dull the pain while I drank my Ensure clones every day. It was only partially successful. But give it a shot if you haven't. Maybe others will have other suggestions.

3. mucositis - I pretty much echo what my fellow David had to say about this. I'm not sure there's a whole lot you can do but spit as much as possible and hang in there. Most of us end up carrying a cup around. I kept those little kidney-shaped emesis basins from the hospital in strategic locations around my apt.

4. dry mouth - yes, another lovely side effect most of us deal with. Like David, mine was very severe at first but gradually lessened. I'm a little over 2 years out of rads and I'd say I've got maybe 75% of my pre-TX moisture back. The best I can say for this is that we're all different and to think about carrying a water bottle around. There are products that will help - Biotene makes a mouth gel (you're probably using their toothpaste and maybe also mouthwash... or you should be if you're not). There's also a product I picked up called Rain Spry spray with xylitol. It's ok, not great. You can check it out at www.xclear.com (no, I have no financial interest in the company!)

I can't comment on the acupuncture. Seems like a high price to me. If you're interested in pursuing that kind of treatment I'd get a referral from a Comprehensive Cancer Center. But as far as I know - think I read this somewhere here at OCF - there are no definitive studies that prove acupuncture is actually effective at returning salivary function for people like us.

Keep asking questions! And be well.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18