Christine,
Wow, you have been through a lot. Thank-you so much for responding. I have pretty much given up hope of getting any real taste back, just hoping the awfulness will be reduced.
I guess all we can go to keep on truckin.


sinonasal undifferentiated carcinoma,
diagnosed 1/09
8 wks radiation, destroyed both major and minor salivary glands, problems with very dry eyes, sinuses & ear tubes;
carboplantin and taxol
Tumor growing again 11/10:
cisplatin and etoposide, 6 wks radiation
follow-up scan in Aug