Our dietician suggested zinc supplements to improve/normalise taste.

12 months on, my Alex has all the effects everyone describes above. The dryness is worst in the morning and is quickly replaced by "foam" during the day. He can't stick his tongue out straight - it veers dramatically to one side no matter how hard he tries. He also can't chew very well because of reduced motility of his tongue and often gets things stuck in the roof of his mouth. Things taste "wrong" which puts him off eating and some things are flat out nasty!! He is taking 99% of his nutrition with Ensure Plus and tends to favour the sweetest of the flavours. Of all the foods he has tried, sweet seems to be the least affected by changes in taste and most "tasteable".

His taste improved with the zinc but we are unsure if this was all to do with the zinc or partly the passage of time that helped.