Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Well, I'm sure glad that Davidcpa enlightened us. I was wondering about what "Meat groups were - I thought maybe this was some new "young people" term that I had not caught up with yet. Now on to the topic at hand:
1) I didn't find out about OCF until my son had already started Rad Tx when a delightful young man also going thru Rad in the waiting room started talking to my son and me and told us about OCF. (I really think waiting rooms everywhere should have OCF pamphlets)
2) At present time, two or three times per day, mainly to: A) offer whatever help or encouragement I can based on my experience as a caregiver. B) Get the best and latest research information. C) Laugh and let a smile bubble up inside of me when one of the "old timers" allows us to see the funny side of things.
2a) When my son was in the throes of Radiation and surviving SCC, I was on this site almost constantly every single day! It was what kept me going and kept my son surviving.
3) I don't have a "Meet World" group, just this Virtual Group and neither my son nor I had a Meet World group when he was in treatment (almost 5 years ago). Although there were opportunities at the hospital because we saw little signs advertising "real people" groups like "Laughter Therapy" and I tried really hard to get my son to go but he just didn't feel like laughing and I couldn't go and laugh without him. Translation of the preceding: YES, NO (Sorry, my right brain likes to give details).
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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