I was very scared!!! I know the PEG saved my life during and after several major surgeries....BUT every morning in the shower, getting dressed or just feeling it in and around my stomach, I couldn�t wait until I could maintain my weight without using it. I complained regularly, and wished I could get the damned thing removed. I had a PEG for 3.4 years. After about 2 years, I was managing everything regarding my nutrition. I didn�t have any help/regular checkups from a nutritionist.

Once I was well enough to swallow my daily calorie intake, knew I was not having further major surgeries and wouldn�t need it again, I focused on taking everything orally (except tablet/capsule medications). I contacted the visiting nurse to have the PEG tube removed the following week.

Once my appointment was booked, the thought of getting it removed started to scare me. I was thinking perhaps I should keep it for a big longer �just in case�. The "what ifs" played havoc with my mind. Many times I nearly dialled the number to cancel the appointment. I started to panic, and might of continued in that mindset for months, except the tube was worn out and looked like it could split any moment creating further dramas. I had it removed as planned. Due to my damaged airways I can�t swallow tablets or capsules, so all medications are prescribed in liquid form.

A couple of days after the PEG was removed, my mind settled down. I was thrilled and proud of myself for taking a huge step having it removed.

For me, knowing I had a PEG incase anything happened (as it had, and does) gave me peace of mind and security knowing I wouldn't have to put myself through further pain trying to maintain my weight and get medication down my throat if need be, without choking. I knew emotionally and physically I didn't want to put myself through any more drama, it was difficult taking the final step.

Karen