Karen-

I think you may have hit the nail on the head when you asked if he has become emotionally attached to his PEG. I have a friend who was a long-term PEG user who, when it came time to remove it, was very anxious and sad about losing what had become a true "friend" and support for years. It was going to be a big loss for her, and she had to approach it almost like someone would approach the loss of a relationship. All ended well, thanks to her wonderful group of outside supporters who gave her encouragement and strength. I wonder if this is also somewhat true for your Alex.

Best of luck -- I'm happy to hear he is able to drink! That's real progress!


Chrissy

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.