If your SLP has never worked with someone with your problem then you need her to refer you to an SLP who does have the experience! I cannot urge you enough to see a SLP with a lot of experience - it can make the difference between eating again and never eating again. What you describe is actually quite common - the upper espohagal sphincter sounds like it isn't opening to allow food and fluid to enter the esophagus - was there a referral to a GI MD made? They usually like to take a look at those things and assess for the need to dialate or stretch that sphincter.

Your surgery wasn't too long ago - it could all be related to residual swelling too. Swallowing is a complex process that we take for granted until we can't do it! Keep up the effort!!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!