Hey Rebel-

Not sure where you are with everything. Are you going to have the surgery. I had a total glossectomy at 33 (I am 37 now) and I can eat pretty well and speak decently. It was a long journey to where I am now. I hope that some of my successes are your successes too. Please let me know if you have any questions. So sorry you are dealing with this!

University of Chicago has some sort of clinical trial with a different type of radiation that has worked for some. Grant Atchaz - a famous chef- was treated successfully-but he is the one and only person I've ever heard of who has survived tongue cancer (at the front of the tongue) with chemo and radiation. Usually it doesn't respond well to those modalities which is why it isn't reccomended. Also- if chemo and radiation don't work - surgery can be very challenging - the skin is delicate- the blood vessels weaker- you don't heal as well.

So lots to consider.

Anyways! Know I am late chiming in but I thought I would.

KATE

I am not a Dr. just relaying the info