 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You may start to see some changes but "dry mouth" usually is one of the last things that we are left with and usually that is post Tx. My taste/dry mouth stages were 1. started to have my taste change within the first 2 weeks. Things either had little or no taste or even a bitter taste. 2. Next came the over production of thick mucous which started late in the Tx and lasted for a few weeks. 3. Then as the thick mucous finally went away I was left with the dreaded DM which was horrible for the first 4 months and gradually improved until my 15th month post Tx when I saw the biggest improvement in saliva/taste and then it got a tad better 24 months post Tx and I estimate today, as I was at 24 months, I am appx 95% pre Tx normal.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
