OP "OCF Canuck, across the pond" Senior Member (100+ posts) Joined: Jun 2010 Posts: 153 | Thanks everybody.
Charm, your neck issues sound much more challenging than mine!
David, my neck cramps are triggered if I tip my head down and forward to one side, then the muscle on that side will cramp.
The late-onset side effect issue doesn't seem to have been addressed much. Mine include late-onset peripheral neuropathy (slight numbness in the soles of my feet), possible late onset tinnitis (ringing in the ears), and these neck muscle cramps.
I've read that some people years after radiation have needed surgery to open up the arteries in their necks, so watch out for that one.
Of course, there's thyroid changes which can take a couple of years to appear?
I've also had changes in my jaw such that my teeth don't come together the same way the used to.
My digestion seems to have changed as well, with a tendency for soft stool (hope that's not TMI). Better than being blocked up, I guess.
Then other changes, but these may just be getting older; dry skin and vision changes come to mind.
These are all manageable to me, once I have the understanding to put them into perspective.
It's ironic that as some of the primary effects improve, some of these others come along.
Well, we're all learning as we go, here.
Cheers,
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014. Sadly has passed away, notified Jan 2015.
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