Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | Hi Marianne. We are about the same age. I was born in '46. I have a daughter named Mary Ann.
I truly understand how you feel about more surgery. I used to say I think I would rather die than to have to have my jaw removed or who knows what else. And I was sure I would refuse any further surgeries if they proposed it.
But in January, 2011, one year after finishing treatments of chemo and radiation for SCC, I found out I had a different cancer - colon cancer spread to my lungs - and it is NOT curable. All of a sudden I am willing to do any surgery and it's not possible. I have started chemo that, wouldn't you know it, causes mouth sores. I've only had one treatment and I already have sores. So I get the feeling of still having oral cancer plus the terminal cancer just to survive a little longer than without chemo. And I'm doing it. It's amazing how your thinking changes.
Do whatever you need to do to live longer. We're too young to die.
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
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