"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Lulu... I know you have been through a battery of tests... I'm sorry if none of them have given you any information on what is going on...
I do have to say - this all started with pain, bleeding, and drastic weight loss... That to me is not a good sign...
You know your body - you know if something is wrong. Find another dr. Someone who will listen.
Don't give up until you get answers.
I had my tongue issue for 4-5 years - the tumor was there when a biopsy was done 2.5 years ago my biopsy came back negative - the ENT guy took the tissue from the wrong place. My neck CT and MRI came back negative when I had one lymph node involved... The results are only as good as the dr. reading them. The pain is causing problems with your life, the weight loss is not normal - unless you are actively trying to lose it. Keep asking questions, seek out another opinion... You know if there is a problem.
Good luck - I wish I knew what was a good hospital in Italy - sorry I can't help with that.
Take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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