Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Lets talk about your PET/CT scan last May. If you had a false positive the doctors would have treated you for cancer. A false positive is where the test shows you have an abnormality when you do not. False positives are very very common with PET scans. It has happened to me and several other members of this forum.
As far as your lack of appetite. Im certain your doctor can prescribe something that can stimulate your appetite again. There are a few members here who will tout the benefits of marijuana. Some places will have this available in different forms. I do not know where you are from so cant help any further. I am not one of the MJ users so dont know any other info about this. Maybe there is something else to help with this too, ask your doc.
I have not eaten a real meal in over 3 1/2 years. This is because of what 3 rounds of cancer has done to me. I have lost all my teeth never to have working dentures or implants. If you have the ability to eat and just dont want to then you are missing out! Sorry, but this is one topic where I unfortunately dont have sympathy for anyone who has the ability to eat anything they like while some friends of mine are unable to take one bite of food. Stop just for one moment and think about this.... unable to ever take one bite of food for the rest of your life! Then think about your situation and you will see it really isnt that bad. You can still taste which other friends cant. You still have all of your mouth intact which most of us cancer survivors do not which impedes our abilities further. You are a lucky, lucky person!!!!
Go get checked by a qualified doctor who will give you the answers you are seeking. But you also need to say to yourself, how far are you willing to go. If you have been having problems and looking for an answer since before last May then you probably do not have cancer. Oral cancer is a fast moving disease which is deadly when left untreated for a length of time like that. Something isnt right, I hope when you find the cause of your problems that it is nothing serious and easily treated. Best wishes to you on your search for an answer.
PS... I love my life and even with any of my limitations, I am a very happy and productive person. My life is very meaningful as I have assisted hundreds of people with their struggles related to living with oral cancer. I have no regrets and stand tall and proud to be the person I have become. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |