thanks everybody. the info ive found on the net is spotty and outdated at best. support and answers from people who have or are experiencing the same thing is a huge help.
i see the surgeon next week mar 9 my ent told me they would probably have to cut out my whole tongue. i live between green bay and marinette wi. the surgeon is at UW madison hospital. the ent knows him personally and says hes one of the best in the country.
i suspect ive had this for over a year. yeah i know i waited too long.
my sense of taste has all but disappeared already. the pain is what finally got me into the doctor.
the last of my teeth were pulled 16 feb.
my biggest concerns are will i ever be able to eat and talk at least so people can understand me? my ability to speak coherently gets worse every day.
though im not a first time cancer patient-i had testicular cancer back in 90-91 which involved surgery and radiation this is much worse.