I agree Karen, it does sound like movement. I think the plan is to get another specialist to look at him so he can then get onto the other one to get things moving. Let's hope so anyway.

Christine, I wish HBO was an option. We tried that but because we had to travel so far each day Steve didn't want to do it. He found the entire experience very nerve wracking. Not just the hbo but having to go to sydney every day. He's a country boy and the crowds stressed him out greatly on top of the hbo. We had the option for accomodation down there at a reduced cost but Steve also wouldn't be in that. He is very much a home body and being away from home for him wasn't a great option. So we tried it but in the end he just couldn't cope with it. He did so well through treatment and was so brave but the whole HBO thing brought him undone a bit and nothing I can do will change his mind on that one.

Liz, we were told 1 month wait when they booked him in for surgery. It's been a very long month let me tell you.

I'm trying to stay positive that everything will work out ok and scans will come back only showing the bone issue and nothing else.

Found this great quote tonight so thought I'd post it here.

If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell. - Lance Armstrong


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.