OP "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi all, appointment was today. Got to say today was yet another day from hell but we made it through it ok. Steve's ct scans came back good. No evidence of cancer showing in oral or chest area's. Big sign of relief here from me. He is however showing extensive damage to his jaw bone. The doctor's advised us today that it could be cancer there but they are leaning towards it being osteonecrosis. So they are booking him in for a full pet scan and a biopsy of his jaw bone and gum region. If all comes back clear then they are wanting him to try HBO again. This is where my nagging wife duties will have to come in because he so doesn't want to do this. If he doesn't do this then the doctors advised us that he is looking at a full removal of his lower jaw. So now we wait. One step at a time. Pet first, then biopsy and then take it from there. Sorry I can't update you with dates as yet. They are going to ring us to let us know what's booked in and when.
I have a copy of the report so have included the findings below. Not much of it makes sense to me. Hopefully it will make more sense to some of you guys.
There is an extensive bony defect in the right body of mandible measuring around 1.6cm in diameter. There is mottled radio density of the bone anterior to this. There is also a bony defect on the left side of the body of mandible measuring 2.5cm from front to back.
The structure of the mandible appears otherwise normal.
Amazingly this man of mine says he doesn't have any pain. He does have a high pain threshold so me and the doctor's seem to think this is more like it but he says no real pain so I'm grateful for that.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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