OP "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | thanks for your comments and thoughts Christine and Mark. It's always comforting and less stressful for me to have you guys here that have been through this and can let me know what to expect. HBO is our last option before reconstruction so we have to do this. But first things first. Pet scan and then biopsy to see where we go next. Then HBO will be on the agenda if all comes back ok. PET scan is tomorrow, not sure on the biopsy yet. I have to do some ringing around to find out appointment times. Even though we were told they would ring with them, so far they haven't. We don't even have an appointment to find out the pet results as yet which is unusual. But I'll worry about that next week. Get the pet out of the way first. Mark I hope HBO works for you this time.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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