Thank you all so much for these glimmers of hope! I'm trying to convince myself that losing my larnyx is not necessarily the end of my world-and this helps. I know OCF must have TONS of info re the proceedure(s) involved, but can anyone offer suggestions of other sites?
Also does anyone know if Medicaid/care will pay for any/all of this? How would I go about researching that?
Please, anyone feel free to make any suggestion-no matter how simplistic it might seem-my mind seems to have stopped functioning when it comes to thinking about this matter and CONFUSION seems to be my most apparent quality right now!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!