Hi- I think I posted in the wrong area before-sorry, still new to this (even after 8 years!) Recent CT shows mass surrounding larynx and partially destroying hyoid bone. He wants to cut it-AND my larnyx-out, leaving me with a hole in my throat to breathe through (still don't understand why) and NO voicebox. I already speak with a barely understandable voice due to partial tongue removal last year, and it's truly been one of the most challenging experiences I've EVER dealt with. I can deal with dying-we all are going to someday, but to ot be able to communicate AT ALL absolutely TERRIFIES me. This is more (MUCH more) than I signed up for, folks!
ANY advice, experience, strength, and/or hope would be GREATLY appreciated and read with fervor.


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!