 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie and Carol,
I am truly sorry to hear of what both of you are dealing with right now. We all learned years ago that there is nothing easy about this horrible beast. I met someone recently that was 7 years out and suddenly is faced with the same thing. It's just a reminder to all of us that we must live TODAY. There is no guarentee for tomorrow but each day wasted worrying is one we will never get back. I try to start my day rejoicing that my eyes opened and I get yet another stab at it! It's just a darn shame that I can't keep that going the entire day.
Know that you both are in my heart and I pray daily that you will be provided with the comfort you need as well as for His love to fill the hearts of your entire circle of family and friends.
May miracles and blessings fall in your path.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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