Karen,
Thanks for a great post. It is empowering to think we could actually be doing something to make our treatment work better!
You are right about walking giving us purpose--and control. It makes us feel better about ourselves.

Thanks for the thoughts on the steroids. I will be discussing them with the doctor Friday.
Anne

SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021