Thanks everyone for the thoughts and prayers. I know they help and are very appreciated.

Sharon, I have looked at that but there is no one else in the family with an issue and I didn't fit any of the other symptoms for that. I have other health issues that fit in this equation as well. I know its genetic and just go with that. I am not sure if anyone will ever be able to figure it out which is ok. I will just continue down this road that has been given to me the best I can.