Thank you to all for the input, since I last posted I've had my surgery, during surgery they found an area of dysplasia on the upper side of my palate (inside the hole) that they are going to watch and I may wind up having more surgery in about six months, they stripped all the scar tissue off the jaw muscle and during surgery were able to get my mouth open to 3cm but of course while I'm awake it's tight again, I'm using the Therabite but my gosh I'm having a lot of pain, I know some is to be expected but I'm never less than 6/10 and usually 8-10/10. The original surgeons I had with the removal of palate also told me nothing could be done about hole as they didn't want to cover up area, however tumor board at Huntsman cancer center said a study showed it didn't make a difference in the rate of reoccurance or finding by covering the hole, it's a large flap that they use a graft from leg along with bone from lower leg if they do bone graft, so I guess it's what your doctors preference is. Again, thank you for the thoughts and info. I appreciate you being here


1st diagnosis 2000 R buccal-clean margins 2nd diagnosis 2003 R buccal, R soft/hard palate-removal to clean margins radiation + obturator (had lock jaw, minimal oral opening
3rd diagnosis 2010 R buccal -haven't had 2nd opionion yet. ENT wants to do total maxillectomy even though cancer is localized