WOW, What an awesome employer. My mom has been my caregiver and I have to say that her employer has been awesome as well since she has had to take off time to take me to doctor appts and stay with me. Now I live with my parents. They allowed her to work from home in order to be able to be with me and take me to everything.

I hope that this next surgery goes smoothly and gives you wonderful results. It gives me some hope as well as I have one side of my mouth that doesn't close and I drool out of it too. My new doctor says that I probably won't be able to get it fixed but I am not giving up.

I too love your comment �It takes a lot of guts and determination to overcome the many difficulties some of us are forced to adapt to every waking moment of the day from the permanent damage we are left to deal with�. I also read on the site that we have to grieve the person we once were and it made sense to me. I do not like who I am right now but I also know that I can't totally grieve who I was since I know I have more work to be done on me. When it is done maybe I will do something to help me accept who I am now compared to who I was.


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10