Hi everyone, I wanted to update on what has been happening since my last surgery in November.

After 3 year and 10 months, last week I returned to work on a part time basis. Due to the many challenges I'm now forced to deal with following OC and severe damage from Osteoradionecrosis I'm not able to return to the same job description I held, and loved before I was diagnosed. I'm extremely grateful my employer has created a new position for me. We're not exactly sure what my position will involve yet, we are making it up as we go along.

Returning during the holiday season has made the transition easier. Skeleton staff and light traffic travelling to and from the central business district has eased my nerves a little. A lot has changed within the office, but then again, so have I.

I miss the old Karen, and everything about my life before this dreaded disease took so much from me. I always will. Besides the emotional and physical bashing our minds and bodies survive during multiple surgeries and treatments, it takes a lot of guts and determination to overcome the many difficulties some of us are forced to adapt to every waking moment of the day from the permanent damage we are left to deal with.

Only months ago, the possibility of returning to the 'corporate world' after battling OC didn't seem like an option for me. Nearly all of my tongue removed and twice rebuilt with tissue from my thigh and hip to be permanently anchored down to become the floor of my mouth. My lower teeth, gums, chin and jaw removed and jaw rebuilt with bone from my hip. Tracheostomy for several weeks at a time. A PEG feeling tube for 3.4 years. Nerve removed from my neck to go in my mouth. Metal plates and screws holding my lower face together. Teeth implants, a titanium plate made to become the platform for my denture teeth to sit on. Neck dissections from ear to ear. No muscle around my neck and throat due to the many surgeries. The list goes on. Yet, here I am planning what food I will prepare to take to work for lunch next week. It is a challenge, but I'm sure it will get a little easier with time.

In February I will be having more surgery to 'release lower lip constracture' and a bilateral face lift. When my jaw was reconstructed my lower lip and face was pulled down and my lips no longer sit together naturally. It causes some drooling which can be very upsetting and stressful when I try to speak. Releasing my lower lip and doing a skin graft should allow more movement and therefore lift my lower lip. At the same time I will be having a bilateral face lift to shape my lower face / jawline to give a natural appearance.

I will be staying in hospital for a couple of nights and off work for about 3 weeks. I will be wearing a compression garment for appoximately 2 weeks after the surgery. Based on the many complications and setbacks I have had in the past, I had warned my boss about the possibility of more surgery. Fortunately, being away from work so soon is not a major problem, they understand my priority is with my health and wellbeing. They have been supporting me every step of the way since the day I was diagnosed.

I will update after the next surgery.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery