| Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Hi jab. Im glad that you came back to give an update. A source for help might be the American Cancer Society. They will help you by paying for medications (up to $300), driving you to radiation treatments or even paying for a prosthesis. It sounds like you will be able to get the graph since you havent had radiation. Or maybe Im missing that????
The things they told you about fighting a recurrence for the rest of your life, I wouldnt rely on that. Oral cancer is very agressive, a surgery that has clear margins should eliminate the cancer so you wouldnt have a recurrence. Ive veen where you are and I know how scary it can be. Please keep coming back and posting. You will gain so much knowledge and strength from OCF. Wishing you all the best!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
