 Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 96 | I also used to have a hole in the roof of my mouth but that has been closed due to reconstruction surgery. I will say that in my case it did get better after a couple of years. I think part of it is your body getting used to having it there and you figuring out ways to minimize it happening.
31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
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