Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I was told albeit after the fact that the ringing is a result of damage that has already occurred so you need to tell them ASAP to prevent further damage. Also this "ringing" as they call it really can manifest itself differently with each of us. I never heard a ringing, I would describe it more like a very faint electrical hum which was not constant. I was never tested pre Tx, only post and they told me that I have permanent loss in my high frequency range in both ears. Not bad enough to wear aids but I have trouble singling out a voice in a group of people; can't hear my cell ring that great; can't ever hear a cell phone ring on a TV show; trouble with female voices (now that can work out to a male's advantage!) and have trouble with emergency vehicles which has led to a few scary intersection moments!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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