I am having issues with trismus also after my surgery. I have not started the rad. yet and my RO is not sure I will be able to even have a mouthpiece because he doesn't think they'll be able to get it in my mouth. When you say you can't afford the thera-bite system, does that also mean you can't affort PT? My RO is sending me for PT-- first visit is tomorrow and I'll let you know if he tells me anything else you might be able to try. Is the cyclobenzaprine making any difference for you?


Susan
Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland.
10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck.
T1N0M0. IMRT started 11/22.
Never smoked, light social drinker
Also happen to be ICU RN