Thanks Christine. I too was very suspicious about what the doctor had said. But friends and family said trust them...it is after all "The Cleveland Clinic" one of the best up there with Mayo Clinic. The doctor who told me it will pass was my Reconstructive doctor. Since my last post I had emailed my Radiation Oncologist and he said it sounds like early stages of Trismus and to go to a dentist who can write a script for a Thera Bite System. Which first off I would not be interested in cause I have zero $$. Secondly from what everyone has said here that the tongue depressors are very affective. I woke this morning with worse results. My mouth can only take 4 depressors. I continue to do the exercises in hope it will help, and from what you kind folks have been sharing with me it should. I will also request therapy from my RO. I will keep you posted on what happens after that. I am scheduled for my follow up on Nov. the 17th. with both doctors. Till then....here comes more weight loss!!! yay!!!!!!!!! So frustrating.
32 Yrs. Male Diagnosed 3/17/10 SCC right side of tongue stage 2 Surgery 4/20/10 Right hemiglossectomy Right selective neck dissection levels 1-4 Right anterolateral thigh free flap Tracheotomy 31 radiation treatments Nov. PET and CT showed something, hopefully nothing awaiting confirmation
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