Thank you Susan. I really appreciate the tips. Last night was a very difficult night. I only got 2 hours of sleep if that. I was in way too much pain. Still am. I am glad you told me about the NSAID's. I was taking Excedrin (3 every 4 hours) for the pain also on 25mcg Fentanyl patch and 10mg Flexeril. I keep shaking, have pressure in my forehead and behind my eyes as well as the back of my head on the right side, swelling of neck and jaw on right side. All my muscles are tight throughout my body, I have become so tense and stressed not only with the jaw but bills, money, insurance, job (if I have one to go back to) things such as this. (sorry to lay it all out there). This hasn't officially been diagnosed as Trismus yet. I have my appt. on the 17th. All signs point to yes though. I have NEVER encountered such pain in my life. (truth)


32 Yrs. Male
Diagnosed 3/17/10
SCC right side of tongue stage 2
Surgery 4/20/10
Right hemiglossectomy
Right selective neck dissection levels 1-4
Right anterolateral thigh free flap
Tracheotomy
31 radiation treatments
Nov. PET and CT showed something, hopefully nothing awaiting confirmation