Hi Cyndie
Not a lot of us MEC's here. I was originally told that since I was Stage 1 surgery would be the end of it. Then I was told that because it was on Perinerual tissue I had to have radiation. It was propably the hardest decision I have ever had to make. The resulting damage from the radiation was and is as much of a concern as the cancer because of the long term effects. It was very painful and in my case I didn't handle the pain meds very well which landed me in ICU for 11 days. I am four months out I feel great but about a week ago I was having pain at the surgical site. Could be healing, nerve damage or a recurrence of the cancer. I am now on an every other week visit to have the area examined. I seem to be the only person in my world that feels that is not a good sign. From what I have learned most of us start with a lower grade but after surgery we are changed to High Grade which has to do with multiple factors. Only you can decide whether or not to do the radiation, I talked to everyone I could think of and researched until I was crazy. The bottom line is that no one on earth can give you the answer. Either we have radiation or we don't. If you have questions or want to know more please feel free to send me a private email.