"OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi Gerri, I can relate to what you are talking about here. I've spent almost 2 years now trying to get Steve to care as much about his health as I do. It gets exhausting and frustrating. During treatment our biggest issues were showers, calorie intake and oral care. I felt like the biggest nag. In the end I had to back off and let him learn the hard way. He's a grown man so I had to let him learn and he did. But still even now he can be difficult. Especially when it comes to doctor's appointments. If he could continually reschedule them I'm sure he would.
Being a carer is one tough job. Some days I feel like Steve's mother, not his wife. But what he goes through and has gone through is harder. So normally I get my point across then leave it up to him to decide what he wants to do. And yes I have had and still do have moments where I get mad and frustrated with Steve. I'm human after all. But to get where we are now it's all been worth it.
Does your husband have someone he can talk to? It sounds like he is depressed so maybe there is a social worker or someone in his health care team that he can talk to. Take care of yourself Gerri and any time you need to vent come here and do it. I did and it helped alot.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started. 17/03/22 lost the battle. Missed dearly
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