Gerri, after reading your signature and post I understand how your husbands behavior could be like this. He has gone thru so much more than most of us on here. I can sympathize with the chemo/rads and mandibulectomy. The mandibulectomy is a horrendous operation!!!! So many times afterwards I had wished I never went thru with it, the recovery and pain was awful. It made chemo and rad look like a walk in the park. Then on top of that he did get the chemo and radiation. Poor guy. My heart goes out to him and also to you as the selfless caregiver. Thats such a thankless job.

At the very end of chemo and radiation is when he will feel the very worst. Even if his side effects are slight, he still could be having fatigue and hearing loss is quite common with cisplatin. At the end of my chemo/rad time period, I wanted to quit tx and just go to bed and stay there. I did stay in bed, not depressed, just so tired it was an effort to take a shower. Talk with his doctor about what you are seeing and ask the doc what can be done. In just a few weeks after the rad is over he will start to recover. The hearing loss is a permanent thing. Ask to have his hearing tested.

Please dont forget to take a few minutes each day to take a deep breath and relax. Best of luck to you both.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile