Thanks guys so much for the info and experiences. I am very grateful that all her dr's are what they call brutally honest. She is the type that could deal without the details. I agree with you all 100% about dealing with the side effects to have life. She isn't at that point yet. Her additude has been mostly negitive. So she thinks the worse is going to happen. In my eyes she has healed exceptionally well from her surgery which to me was an extreme surgery. I belive she will heal well with radiation. The dr also said they will do everything they could to reduce the pain which is great and he doesn't feel like she will need a PEG. That I was concerned about to. I would rather her have a PEG just in case, but she is being scene at one of the best CCC's so I hope they know. They want her to also start physical therapy for her neck. She doesn't have dental insurance so we have to figure that out also. I must say her teeth are not to good now so we will see what she will have to get done. Again thanks for the info and support. Being a caregiver and researcher for her is a tough job


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!