Another update (or downdate) from Texas:
16 treatments in out of 30....Had to have surgery last Tuesday to have a tube put in my R ear to let it drain (radiation has eustation tube messed up) and have now noticed my taste is getting muted somewhat...Doc assured me tongue was NOT in IMRT fields, but techs confirmed my fears today, tongue is getting hit at least 3 different times. (Another reason to give nursing staff and radiation staff weekly candy treats - when you have a question..they are prone to help you out) I am loosing my sense of taste, and lost 3 pounds this past week. I'm sure Doc is going to get on me tommorrow about weight loss, but I'm only
-4.1 lbs since starting 3 weeks ago. I'll be honest, I guess it's Ensure from here on, since it has some taste, and nutrition value. Any suggestions on how to keep spirits up when I won't be able to taste my 12yo's upcoming birthday cake.....I know I'm there, and that is all that counts, but this was one of two big things I didn't want to happen. PEG being the other. Any thoughts appreciated! Still fighting the fight! Like the good soldier I am, I'll trudge on, and get to the objective...I have just lost my supply of MRE's and are on K rations from here on out. (You service people know THAT difference)
only 14 treatments left!


Devin J Lifelong Non Smoker Career Fire Fighter
5.19.10 Dx Muco Epidermoid Carcinoma - roof of mouth
6.18.10 Surgery - Maxillectomy, radical neck dissection right side, nasal septum partial removal, nasal turbines removal, 5 teeth removed, Trimus, Obturator
8.25.2010 Began 30 treatments of IMRT